In partnership with the Lung Foundation Australia, IMPACCT is undertaking the next stage of an international research project to design an optimal breathlessness action plan to be used by people with chronic obstructive pulmonary disease (COPD) (sometimes also called emphysema, chronic bronchitis or chronic asthma).
Designing and testing an optimal breathlessness action plan
The breathlessness action plan will guide people on what to do when breathlessness becomes worse. The plan will be made available on the Lung Foundation Australia’s website together with their COPD action plan, which gives information for medical treatments such as antibiotics and emergency care for COPD exacerbations.
Get involved!
We are now seeking expressions of interest for people who have breathlessness from COPD or provide support to someone who does for the next stage of The BREATHE Project. We need your experience to help develop the breathlessness action plan in either of the following two ways.
Please note that you don’t need to have used a breathlessness action plan before to be involved in this stage of the project.
1. Help design the plan by taking part in a co-design workshop
Join online Zoom workshops to help decide what advice people will find useful to include in the plan and how the plan should look. For workshops, you will be reimbursed $50 per hour with a flexible gift card.
2. Help test the plan by providing feedback
After the workshops are completed, a draft breathlessness action plan will be made publicly available. You can help us by spending 10 minutes giving feedback on the draft breathlessness action plan to tell us what you like and don't like about it.
To get involved in either of the two ways above, please contact the project team by email to Breathe@uts.edu.au or by telephone +61 (0)493 867 101.
Project phase 1
The first phase of this project was a survey, which closed at the end of 2023. To read about phase 1, please go to the Breathlessness action plan survey page.
